Many women unaware they have this new disease

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A cesarean section, often called a C-section, is a surgery where doctors deliver a baby by making cuts in the mother’s belly and uterus. C-sections can save lives and are sometimes the safest option for both mother and baby. However, doctors are now learning more about the long-term problems that can happen after this surgery.

Many women who have a C-section experience health issues that last long after the birth. Until recently, these problems were not well understood and did not even have a specific name. Now, new research is giving these problems a name and bringing more attention to them.

More than 30% of women who have a C-section report lasting problems. These can include ongoing belly pain, heavy bleeding, and trouble getting pregnant again. A common cause of these problems is a poorly healed scar inside the uterus, called a “niche.”

In the Netherlands, researchers found that about 60% of women with a C-section scar develop a niche. This scar can cause more serious health issues if not properly treated.

To better describe and study these problems, doctors have introduced a new term: Cesarean Scar Disorder, or CSDi for short. This new name comes from an international study led by Amsterdam UMC, where experts worked together to create a clearer way to diagnose and treat these symptoms.

The study involved 31 experts from around the world, including countries like the United States and China. These experts all had experience helping women with C-section scar problems and had also done research on the subject. Together, they agreed on a shared definition of Cesarean Scar Disorder.

Naming and defining CSDi is a big step forward. It helps doctors recognize the symptoms early, so they can give women the right care and treatment. It also helps women understand that these problems are real and that help is available.

One of the leading researchers, Saskia Klein Meuleman, explained that people should not underestimate how much C-sections can affect a woman’s health over time. By giving these long-term issues a name, the medical community can better support women who are suffering from them.

Knowing about Cesarean Scar Disorder also helps women make more informed choices about childbirth. They can talk with their doctors about the possible risks and benefits of having a C-section, and they will know what symptoms to watch for afterward.

If a woman who had a C-section notices heavy bleeding, ongoing pain, or has trouble getting pregnant, she can now ask her doctor about CSDi. Early treatment may help prevent bigger health problems later.

This research, published in JAMA Network Open, marks an important moment in women’s health care. It opens the door for more studies, better treatments, and stronger support for women after childbirth.

Understanding Cesarean Scar Disorder is one more step toward making sure all women get the best possible care after having a baby. With better information and more awareness, women around the world can look forward to healthier futures after a C-section.

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